ABSTRACT Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, usi...
A condição crônica na infância exige da família a continuidade do cuidado ao longo do tempo, com ações que contemplem a vigilância e monitoramento das diferentes necessidades e demandas das crianças. Este estudo teve como objetivo analisar o manejo familiar no cuidado à criança com condição ...
O conceito de resiliência familiar menciona que uma família se pode tornar mais resiliente
através de experiências vividas no decorrer do ciclo vital, em interação com o meio envolvente.
Em todas as famílias são vivenciadas situações de stress e momentos de crise, como a
descoberta da doença c...
Objective: to analyze narratives about the experience of hope of families in the context of pediatric chronic illness. Method: a narrative research using Family Systems Nursing as a conceptual framework. Three families of children and adolescents diagnosed with complex chronic illness participated in th...
Objective: to understand the experience of families in the care of children with myelomeningocele. Method: a qualitative research study, which adopted Symbolic Interactionism and Grounded Theory as its theoretical and methodological framework, and the semi-structured interview as a data collection instr...
Objective: To know how the user who is dependent on care and who has a chronic health process affected by a chronic non-communicable disease has been taken care of by the family and by the professionals of the Family Health Strategy. Methods: Descriptive, qualitative study, carried out in a Basic Health ...
An essay that aims to reflect on the family experience of care in chronic situation, increasing the understanding of the family as the primary caregiver. It is based on comprehensive approach in studies conducted in three matrix searches from family care experiences. We have taken three axes to organize ...
